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Rank: Advanced Member
Groups: Registered
Joined: 2/26/2010
Posts: 271
Location: hampshire
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Hi all, having my first round of golimumab this coming Thursday and got a nurse coming round to administer the first one. Its by epipen I think, so hoping that this works. Feeling a bit nervous but just so hoping it works!
Sorry havent been on for a while, my son has been poorly and just been diagnosed with Crohns this morning, so this has overshadowed everything really. He's ok, glad now that he knows what he has and he can deal with it.
Hope you are all well and keeping warm.
Love Heather
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Rank: Advanced Member  Groups: Registered
Joined: 6/18/2010 Posts: 351 Location: Herne Bay Kent
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Hi Heather
So sorry to hear about your son, I do hope they manage to get him stabilized on the right treatment quickly.
Wishing you every success with the Golimumab, hope it all works well for you.
Best Wishes
Sue
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Heather, Good luck with the Golimumab - really hope it works for you. Sorry to hear about your son - hope they can keep the Chrohn`s under control for him. Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Heather,
Everything crossed that the drug works well for you.
Sorry to hear about your son, hope he is getting good care to keep the crohns under control.
Love Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Heather
I am waiting to start on this. I am hoping my starting date will be soon but my local authority have decided to offer this new drug to a different homecare provider, so we are waiting for contracts to be signed etc and I will be the first one in Shropshire to try this.
This will be my third anti-tnf after failing on Enbrel and Humira. I have had bad reactions to both of these and also Rituximab. I am keeping my fingers crossed that the Simponi will be my saviour.
I would be interested to know how you get on with this and good luck on Thursday.
Jackie
xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Heather
Sorry to hear about your Son, I hope his medication kicks in for him soon and that he will be much better.
Good luck with your new drug, I don't know anything about it, but wishing you will with it and hope it works.
Jackie,
I also hope you get the go ahead soon and you can get started.
Rose
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Rank: Member
Groups: Registered
Joined: 2/1/2012
Posts: 20
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heather1 wrote:Hi all, having my first round of golimumab this coming Thursday and got a nurse coming round to administer the first one. Its by epipen I think, so hoping that this works. Feeling a bit nervous but just so hoping it works!
Sorry havent been on for a while, my son has been poorly and just been diagnosed with Crohns this morning, so this has overshadowed everything really. He's ok, glad now that he knows what he has and he can deal with it.
Hope you are all well and keeping warm.
Love Heather Hi Heather, i am new on here so still findin my way about, really hope golimumab works for u, so sorry bout your son hope they find the right medication. take care, geraldineF xx
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Rank: Advanced Member
Groups: Registered
Joined: 2/26/2010
Posts: 271
Location: hampshire
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Hi all thanks so much for the replies. My son is very upbeat and positive (he's 21 in April) and determined that this disease is not going to beat him. He's on medication and steroids and is going back to work tomorrow. I would take it in a heartbeat for him if I could!
Will post back on thursday when Ive had the first treatment.
Keep well
Heather xxxx
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Heather,
good luck for Thursday with starting on the new drug,
sorry to hear of your Son's diagnosis but pleased he is being positive about it, great at such a young age.
do let us know how you get on,
Suzanne x
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